I came across a blog that explained the origins of the term Previvor.  I do not know if it is the only origin of the term but it is an interesting little tidbit.  The second paragraph in the definition as it is written describes Diane’s condition.  The definition is below.

Previvor n. person who does not have cancer but possesses a genetic predisposition to develop the disease; a presurvivor

A person who does not have cancer, but has precancerous cells or a genetic mutation known to increase the risk of developing it: a pre-survivor. With the rise in genetic testing and groups like FORCE (Facing Our Risk of Cancer Empowered) that encourage women to find out whether they’re likely to develop breast or ovarian cancer, some Previvors are taking such drastic measures as getting preemptive mastectomies or hysterectomies.

The link to the blog where I found the above is:  Think Outside The Box.

The following was added March 2,2010:

Below is a link provided to us about a blog associated with FORCE that explains in greater detail the origins and the hopes for the label Previvor.

Thoughts from FORCE – Previvor: Past, Present, & Future

Visit the following link for a discussion about the label “Previvor” on another blog.  I left a comment joining the discussion there too.

The Secret Life of A BRCA1 Mutant – On the word “previvor”

Advertisements